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Fibromyalgia

 
moondust
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User ID: 1133894
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08/18/2011 09:57 AM
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Fibromyalgia
Anyone else have this? I thought I had arthritis, but turns out it's fibromyalgia. Found out on Monday. -_-

So far diclofenac helps but I've had to take two pills for effectiveness and I don't think my symptoms are ever going to be bad enough for me (personally) to ever use narcotics (vicodin, percocet(sp?), etc.

I think it's gotten worse since high school...just it was never bad enough for a proper diagnosis (and now it is).

sigh
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"Does koala bear poop smell like cough drops?" ~Tom Robbins (Jitterbug Perfume)
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Resister

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08/18/2011 10:08 AM

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Re: Fibromyalgia
My wife has it. Something that helped her was a topical cream called Biofreeze. Got it at the local drug store. It takes the edge off and stops the burning.

To really get the tight spots you have to mesage them out. It hurts a lot at first, but as you get the spot broken up, it relaxes everthing else in the area.
"God forbid we should ever be 20 years without such a rebellion. The people cannot be all, & always, well informed... If they remain quiet under such misconceptions it is a lethargy, the forerunner of death to the public liberty... Let them take arms... What signify a few lives lost in a century or two? The tree of liberty must be refreshed from time to time with the blood of patriots & tyrants. " - Thomas Jefferson in 1787
Anonymous Coward
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08/18/2011 10:10 AM
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Re: Fibromyalgia
My wife has to go to a rheumatologist, her endocrinologist thinks she might have it. She just got diagnosed with poly-cystic ovarian disease, but she has other symptoms that point towards fibromyalgia.

I'm glad you are finally getting some answers... it's taken us 15 years to get to this point. Head to toe and everything in between has been gone over and she is just now seeing relief.
Anonymous Coward
User ID: 1509705
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08/18/2011 10:12 AM
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Re: Fibromyalgia
This will help

[link to docsprefer.com]

Systemic enzymes

Listen to this lecture one of the subjects is Fibromyalgia

[link to www.naturalhealthpodcasts.com]
Feign
User ID: 1349792
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08/18/2011 10:14 AM
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Re: Fibromyalgia
My wife has been battling it for the past 8 years. Different people suffer in varying degrees. Waking up every morning feeling like she got hit by a bus and it wasn't long before she started on the narcotics, i may not like it personally, but only you can be the judge of your own pain and what works best to lessen it. I have met some people who are bedridden from it and others who are wheelchair bound, so I consider my wife somewhat lucky. There is nothing worse than suffering from an illness that no one can really do anything about. You would be surprised at the number of people who actually suffer from this disease, and the varying degrees to which they suffer. Thats why it is so hard to find a treatment.

Good luck to you. You are not alone.
moondust  (OP)

User ID: 1133894
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08/18/2011 10:15 AM
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Re: Fibromyalgia
My wife has it. Something that helped her was a topical cream called Biofreeze. Got it at the local drug store. It takes the edge off and stops the burning.

To really get the tight spots you have to mesage them out. It hurts a lot at first, but as you get the spot broken up, it relaxes everthing else in the area.
 Quoting: Resister


The burning pain is the worst, but I don't get that constantly which is a good thing. (50% of the time)

I'll check into the Biofreeze. Thanks!
"But don't you think it's better for a girl to be preoccupied with sex than occupied?" -The Moon Is Blue(1953)
“Ninety-nine percent of who you are is invisible and untouchable.” ~Richard Buckminster Fuller
"Does koala bear poop smell like cough drops?" ~Tom Robbins (Jitterbug Perfume)
[link to www.mpp.org] medpot
:sleepz:
~**Ron Paul 2012**~
moondust  (OP)

User ID: 1133894
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08/18/2011 10:17 AM
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Re: Fibromyalgia
Wow! There are so many caring hubbies visiting my thread.

Your wives are all very lucky to have someone looking out for their welfare. hf
"But don't you think it's better for a girl to be preoccupied with sex than occupied?" -The Moon Is Blue(1953)
“Ninety-nine percent of who you are is invisible and untouchable.” ~Richard Buckminster Fuller
"Does koala bear poop smell like cough drops?" ~Tom Robbins (Jitterbug Perfume)
[link to www.mpp.org] medpot
:sleepz:
~**Ron Paul 2012**~
Anonymous Coward
User ID: 1381780
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08/18/2011 10:19 AM
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Re: Fibromyalgia
The worst part for me is it makes it difficult to
read and consentrate on what I am doing at the time.
Which leads to mistakes at work and misunderstandings
at home.

This stuff us a lot worse than most people realize
as the effects contribute to a lot of problems that
could have been avoided.
Anonymous Coward
User ID: 1337468
United States
08/18/2011 11:22 AM
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Re: Fibromyalgia
Eliminate ALL aspartame from your diet; that includes toothpaste, mouthwash, Diet everything.
moondust  (OP)

User ID: 1133894
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08/18/2011 11:24 AM
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Re: Fibromyalgia
Eliminate ALL aspartame from your diet; that includes toothpaste, mouthwash, Diet everything.
 Quoting: Anonymous Coward 1337468


never thought about toothpaste, but I'll do that.
"But don't you think it's better for a girl to be preoccupied with sex than occupied?" -The Moon Is Blue(1953)
“Ninety-nine percent of who you are is invisible and untouchable.” ~Richard Buckminster Fuller
"Does koala bear poop smell like cough drops?" ~Tom Robbins (Jitterbug Perfume)
[link to www.mpp.org] medpot
:sleepz:
~**Ron Paul 2012**~
Anonymous Coward
User ID: 1394135
United States
08/18/2011 11:25 AM
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Re: Fibromyalgia
The worst part for me is it makes it difficult to
read and consentrate on what I am doing at the time.
Which leads to mistakes at work and misunderstandings
at home.

This stuff us a lot worse than most people realize
as the effects contribute to a lot of problems that
could have been avoided.
 Quoting: Anonymous Coward 1381780


Things that were a problem:
Severe pain and fatigue,
Severe RLS
Repeated cold sores, week after week over and over.
Joints all swollen and tender,
Brain fog, bad.
High dose prednisone took a hip and my eyes with cataracts
Humira helped, a lot, with the pain and swelling, not the other stuff. Could finally get off steroids
LDN helped a lot with the other stuff, No more colds coldsore or rls, unless I forget for a week, and then it goes away in a day.and routine motrin steady,
got off humira now just ldn and motrin, and the occasional long lasting intrarticular steroids
Anonymous Coward
User ID: 1128877
Canada
08/18/2011 11:52 AM
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Re: Fibromyalgia
I don't have it but looked it up once and found this video.
Not sure how credible it is though.

moondust  (OP)

User ID: 1133894
United States
08/18/2011 12:39 PM
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Re: Fibromyalgia
I don't have it but looked it up once and found this video.
Not sure how credible it is though.


 Quoting: Anonymous Coward 1128877


Oh no doubt. I like s*x too much though, so for a few days after I deal with burning sensations in my limbs. I also have this if I do some stargazing and lift my head up to look at the sky for too long without laying back.

So......I won't disagree that posture has something to do with it, but there are other symptoms that my straight posture hasn't eliminated. The burning sensation I get is definitely from my back and pissed off nerves though. definitely.
"But don't you think it's better for a girl to be preoccupied with sex than occupied?" -The Moon Is Blue(1953)
“Ninety-nine percent of who you are is invisible and untouchable.” ~Richard Buckminster Fuller
"Does koala bear poop smell like cough drops?" ~Tom Robbins (Jitterbug Perfume)
[link to www.mpp.org] medpot
:sleepz:
~**Ron Paul 2012**~
Anonymous Coward
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United States
08/18/2011 01:00 PM
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Re: Fibromyalgia
Aspartame Symptoms:

[link to www.dorway.com]

Symptoms List: [link to dorway.com]

Main site: [link to dorway.com]
Anonymous Coward
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08/18/2011 01:05 PM
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Re: Fibromyalgia
I have/had fibromyalgia. I went off gluten for a month, to see if it was due to all the breads I eat. And guess what, it was. I am thankful for it. I went to a holistic doctor who did a food allergy test. He found all the was wrong with me. But getting off gluten helped so much. I don't get stiff/unbearable pains. Now it didn't help with my energy level, but the pains are all gone.

I would for sure try that. You can google, there's so much on it.
Anonymous Coward
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08/18/2011 02:37 PM
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Re: Fibromyalgia
Anyone else have this? I thought I had arthritis, but turns out it's fibromyalgia. Found out on Monday. -_-

So far diclofenac helps but I've had to take two pills for effectiveness and I don't think my symptoms are ever going to be bad enough for me (personally) to ever use narcotics (vicodin, percocet(sp?), etc.

I think it's gotten worse since high school...just it was never bad enough for a proper diagnosis (and now it is).

sigh
 Quoting: moondust


To the OP and everyone on this thread!!!!!!

You need to research Iodine! We have Iodine receptors on every cell in the body. One of the doctors in the Iodine Project Group said in an interview that if everyone was Iodine sufficient there would be no need for pain medications (he also said no need for antidepressants as well)

There is a lot to learn about Iodine and you can do it by checking out this thread

Thread: IODINE - What they DON'T tell us about this MIRACLE nutrient! UNBELIEVABLE!

And going here: [link to www.iodine4health.com]

In addition you might want to check out Dr. Jacob Tietelbaum's website. He is an expert in Chronic Fatigue and Fibromyalgia. [link to www.endfatigue.com]

He sort of lumps both illnesses together and states that in order to heal you have to address (SHIN) Sleep, Hormone Balance, Infection in the body, And Nutrition.

He also recommends taking D-Ribose (5grams/3x day)
D-Ribose is a natural sugar (not the "bad" type) that the body needs to produce energy in the heart and cells of the body...taking it allows the individual to have more energy.

Lastly you might want to google "Coffee Enemas" and Fibromyalgia. Coffee enema's helps remove toxins from the liver & blood, increases glutathione (our master antioxidant) production...

Hope this helps!
Anonymous Coward
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08/18/2011 02:38 PM
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Re: Fibromyalgia
My wife has to go to a rheumatologist, her endocrinologist thinks she might have it. She just got diagnosed with poly-cystic ovarian disease, but she has other symptoms that point towards fibromyalgia.

I'm glad you are finally getting some answers... it's taken us 15 years to get to this point. Head to toe and everything in between has been gone over and she is just now seeing relief.
 Quoting: Brutalsun


Google poly-cystic ovarian disease and Iodine! They are connected!
Anonymous Coward
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08/18/2011 02:42 PM
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Re: Fibromyalgia
Ive had it for years and tried pretty much everything. The best thing Ive found that helps is MSM powder and doing yoga daily. This makes mine manageable and Im not on the poison Doctors peddle which ultimately, in my experience, makes it worse over time.
Anonymous Coward
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08/18/2011 02:55 PM
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Re: Fibromyalgia
Fibromyalia is in fact Flourine poisoning see here:-

[link to www.earthclinic.com]

the second part is here:-

[link to www.earthclinic.com]

These are research papers the medical profession do not want you to see, they need your money to afford the petrol for there Rolls Royces....

The aches and pains of FM are caused mainly by low levels of Magnesium, vital for proper cell function, Flourine removes available Magnesium, Calsium and Potassium (also Iodine but for different reasons)

This basically makes your muscles stop working.

Two things to do

1. Try and remove the source of the flourine (drink only bottled water if you are in a Flourifated zone) stop taking things like Prozac.

2. Take Magnesium/calsium supplments
SmartestOne

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08/18/2011 03:08 PM
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Re: Fibromyalgia
(Worked for 10 years for one of the top rheumies in the world.)

The term "fibromyalgia" has unfortunately become a catch-all term. TRUE fibromyalgia has characteristic trigger points, and that is the basis for the diagnosis. Also, TRUE fibromyalgia is ALWAYS a secondary diagnosis, superimposed on some other "autoimmune" condition (rheumatoid arthritis, psoriatic arthritis, etc.). So if you TRULY have fibro it's important to find out what your PRIMARY DIAGNOSIS is. Don't fart around with anyone but a qualified rheumatologist for your workup and diagnosis.

1) About 85% of fibro patients have FULL RESOLUTION of their fibro symptoms after getting their calcium/magnesium ratios corrected. Supplement with quality cal and mag supps, and give it about three months.

2) The remaining 15%, who do not respond to the above cal-mag regimen, experience resolution of symptoms with malic acid supplementation.

Take care.

Last Edited by SmartestOne on 08/18/2011 03:08 PM
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08/18/2011 03:11 PM
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Re: Fibromyalgia
The godsend for my Fibro was Kava Kava capsules. It works wonderfully for me. It really reduced the pain to barely noticable and after a few years, now I only need it when I get a flare up.

Another really good product is Malic Relief Formula. It's by Biochem or Twinlab (I get them confused) - but it was the first "miracle" pill I found.

Before I found these, I was on a cocktail of pills - anti-depressents, muscle relaxants, pain pills...10 different things per day...and I still hurt.
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Anonymous Coward
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Brazil
08/18/2011 03:16 PM
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Re: Fibromyalgia
One word.

CANNABIS.

A holy medicine.
Anonymous Coward
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08/18/2011 03:19 PM
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Re: Fibromyalgia
My momma has it and she is pretty far advanced with the Fibro. She has to take Lortabs or she is in such incredible pain, but with them and the Motrin, she is able to move much more pain free. She's 63, so I suppose some of it is arthritis and aging as well, but she started having the Fibro symptoms back in her 30's and oh, I just remember her hurting and not knowing why.

Hope you get some relief!
Simply Put

User ID: 1278102
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08/18/2011 03:32 PM
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Re: Fibromyalgia
(Worked for 10 years for one of the top rheumies in the world.)

The term "fibromyalgia" has unfortunately become a catch-all term. TRUE fibromyalgia has characteristic trigger points, and that is the basis for the diagnosis. Also, TRUE fibromyalgia is ALWAYS a secondary diagnosis, superimposed on some other "autoimmune" condition (rheumatoid arthritis, psoriatic arthritis, etc.). So if you TRULY have fibro it's important to find out what your PRIMARY DIAGNOSIS is. Don't fart around with anyone but a qualified rheumatologist for your workup and diagnosis.

1) About 85% of fibro patients have FULL RESOLUTION of their fibro symptoms after getting their calcium/magnesium ratios corrected. Supplement with quality cal and mag supps, and give it about three months.

2) The remaining 15%, who do not respond to the above cal-mag regimen, experience resolution of symptoms with malic acid supplementation.

Take care.
 Quoting: SmartestOne


Fibro sufferer here.

Never heard that Fibromyalgia became a catch all term. I was always under the impression (and even told as much by my GP) that Chronic Fatigue Syndrome is a "waste basket" diagnosis. One they toss at you when they can't figure out what's really wrong.
It took several years before finally being directed to a rheumatologist that specializes in Fibro that I got my diagnosis.

My Fibro plays off my arthritis and vice-versa. When one flares up, the other does as well. It has gotten so bad that one flare landed me in a wheelchair for a couple of weeks.
moondust  (OP)

User ID: 1133894
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08/18/2011 04:53 PM
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Re: Fibromyalgia
One word.

CANNABIS.

A holy medicine.
 Quoting: Anonymous Coward 1509534


of course ^_^
"But don't you think it's better for a girl to be preoccupied with sex than occupied?" -The Moon Is Blue(1953)
“Ninety-nine percent of who you are is invisible and untouchable.” ~Richard Buckminster Fuller
"Does koala bear poop smell like cough drops?" ~Tom Robbins (Jitterbug Perfume)
[link to www.mpp.org] medpot
:sleepz:
~**Ron Paul 2012**~
moondust  (OP)

User ID: 1133894
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08/18/2011 04:57 PM
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Re: Fibromyalgia
Fibromyalia is in fact Flourine poisoning see here:-

[link to www.earthclinic.com]

the second part is here:-

[link to www.earthclinic.com]

These are research papers the medical profession do not want you to see, they need your money to afford the petrol for there Rolls Royces....

The aches and pains of FM are caused mainly by low levels of Magnesium, vital for proper cell function, Flourine removes available Magnesium, Calsium and Potassium (also Iodine but for different reasons)

This basically makes your muscles stop working.

Two things to do

1. Try and remove the source of the flourine (drink only bottled water if you are in a Flourifated zone) stop taking things like Prozac.

2. Take Magnesium/calsium supplments
 Quoting: Anonymous Coward 1509612


My grandma brought home a TMJ pamphlet and it discussed taking multi-mineral supplements, so I could see magnesium/calcium being correlated to those with fibro.

Regarding fluorine, that's hard to avoid, but I'm willing to try anything at this point. It's hard to know if there is or isn't any in the drinking water. We buy bottled water and I can't taste it. I know fluoride "has no taste" but I swear I can taste it in some waters. Makes me gag, as does toothpaste. puke
"But don't you think it's better for a girl to be preoccupied with sex than occupied?" -The Moon Is Blue(1953)
“Ninety-nine percent of who you are is invisible and untouchable.” ~Richard Buckminster Fuller
"Does koala bear poop smell like cough drops?" ~Tom Robbins (Jitterbug Perfume)
[link to www.mpp.org] medpot
:sleepz:
~**Ron Paul 2012**~
Anonymous Coward
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08/18/2011 05:08 PM
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Re: Fibromyalgia
Have costochondritis and wondering if I might have the symptoms of fibro, too.

How much Cal-Mag or something similar would help? What will get fluoride out of the water?
mopar28m

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08/18/2011 05:34 PM
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Re: Fibromyalgia
Fibromylagia is caused by a fight or flight syndrome that happened & your body properly dispose of the bodies chemicals that developed as a result of that. Maximized Living chiropracters can help you get rid of it. Do a google search for their website & then you can search for a chiro in your area.

Until then, you can take D3 & Selenium to help with the pain.
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Anonymous Coward
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08/07/2012 06:57 PM
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Re: Fibromyalgia
sorry
Anonymous Coward
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08/07/2012 07:07 PM
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Re: Fibromyalgia
Anyone else have this? I thought I had arthritis, but turns out it's fibromyalgia. Found out on Monday. -_-

So far diclofenac helps but I've had to take two pills for effectiveness and I don't think my symptoms are ever going to be bad enough for me (personally) to ever use narcotics (vicodin, percocet(sp?), etc.

I think it's gotten worse since high school...just it was never bad enough for a proper diagnosis (and now it is).

sigh
 Quoting: moondust
Google fluoride poisoning.
Anonymous Coward
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08/07/2012 07:16 PM
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Re: Fibromyalgia
I recommend an elimination diet for 30 days, gradual reintroduction of the foods you've eliminated combined with watchful observance for symptoms of pain/fatigue. Drink the purest water you can, stay well hydrated, urine should be pale yellow/clear. Make sure you get adequate sleep. Stay active with yoga, walking, and light exercise.
Look up the diet to be sure what to avoid, but foods to be eliminated include meat, wheat, dairy, nightshade vegetables (tomatoes,potatoes,peppers), citrus, concentrated sweets, and caffeine.

I also recommend the following book for an incredible amount of good information regarding fibromyalgia: The Feel-Good Guide to Fibromyalgia & Chronic Fatigue Syndrome: A Comprehensive Resource for Recovery, by Lynette Bassman PhD





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