Misdiagnosed for years, finally an answer | |
Anonymous Coward User ID: 70562947 United States 10/15/2015 02:57 AM Report Abusive Post Report Copyright Violation | After all this time I was told I had severe anxiety, panic disorder, sleep disorder, migraines, complex migraines, trigeminal neuralgia... And finally I saw a neuro worth a dime and he said its most likely nocturnal temporal lobe seizures. Is there anyone out there that has anything similar, he is running a few tests to be sure, but it makes sense now that most of my issues went away when one doctor put me on anti-seizure meds for migraines, and once I stopped they all returned. I get auras just before the onset, then deja vu, followed by intense fear, then I can't think or find words, then I have headaches. At night, I fall asleep, sometimes my husband wakes me up and says I had been screaming, I will feel very weird for a minute, sometimes I hallucinate, my arms look really large, or I'll see shapes in the wall.the sleep ones happen about 5-10 minutes upon falling asleep, and almost always happen when I'm exhausted or stressed. I wake up feeling like my body is hurting, vibrating almost, intense vertigo, heart racing, and I always feel so tired because I sleep little and wake often. Anyone else? Quoting: Holldoll Ever been tested for lyme disease or tick-borne illnesses? |
Holldoll
(OP) User ID: 43880191 United States 10/15/2015 03:00 AM Report Abusive Post Report Copyright Violation | |
Anonymous Coward User ID: 70558484 Finland 10/15/2015 03:02 AM Report Abusive Post Report Copyright Violation | |
BoredBoredBored
User ID: 70567292 Greece 10/15/2015 03:03 AM Report Abusive Post Report Copyright Violation | |
Anonymous Coward User ID: 70558484 Finland 10/15/2015 03:06 AM Report Abusive Post Report Copyright Violation | |
M*walk
Low Earth Orbit User ID: 9652994 United States 10/15/2015 03:10 AM Report Abusive Post Report Copyright Violation | Yes, a few years back, but it was negative. I even had a bullseye rash, but the doctor dismissed the idea Quoting: Holldoll ELISA and western blot are crap, many are told the test says negative, then they end up having a borrelia infection. Watch the documentary "Under Our Skin", and it's sequel. Many good facts and exposes the tyrants at the CDC and IDSA for keeping Lyme Dr's from practicing their cures, as well as their peddling of 30 year old, rehashed bs that doesn't always cure patients, and they force upon other Doctors as treatment guidelines. Last Edited by M*walk on 10/15/2015 03:12 AM “The tree of liberty must be refreshed from time to time with the blood of patriots and tyrants.” |
Anonymous Coward User ID: 70562947 United States 10/15/2015 03:16 AM Report Abusive Post Report Copyright Violation | Yes, a few years back, but it was negative. I even had a bullseye rash, but the doctor dismissed the idea Quoting: Holldoll They will dismiss you.... If you had the rash, you probably have it. It is a stealth infection. Look for a Lyme literate doctor in your area and get testing done through IGenex Labs. |
Anonymous Coward User ID: 22154267 United States 10/15/2015 03:21 AM Report Abusive Post Report Copyright Violation | |
Anonymous Coward User ID: 297737 United States 10/15/2015 03:45 AM Report Abusive Post Report Copyright Violation | |
Holldoll
(OP) User ID: 43880191 United States 10/15/2015 04:10 AM Report Abusive Post Report Copyright Violation | |
Anonymous Coward User ID: 34248094 Belgium 10/15/2015 06:27 AM Report Abusive Post Report Copyright Violation | Yes, a few years back, but it was negative. I even had a bullseye rash, but the doctor dismissed the idea Quoting: Holldoll Yeah but the problem is : there are few doctors on the market who can truly examine your for tickbites from the past. In Belgium there is 1 (!) doctor who has specialized in this and where all other dr's fail he often finds traces from a tickbite, don't matter if its years old .. |
BoredBoredBored
User ID: 70560854 Greece 10/15/2015 08:25 AM Report Abusive Post Report Copyright Violation | Last time I felt like that I found out that my other half had been slipping narcotics into my drinks. Obviously, we're not together anymore. I took him out of the equation and all of the symptoms went away. Quoting: BoredBoredBored Yeah, that was pretty much my response, even in a drug induced state of mind. |
Anonymous Coward User ID: 2558410 United States 10/15/2015 08:37 AM Report Abusive Post Report Copyright Violation | |
M*walk
Low Earth Orbit User ID: 9652994 United States 10/15/2015 03:47 PM Report Abusive Post Report Copyright Violation | Lyme disease mimics rheumatoid arthritis, its not the cause of every human illness in the world. Quoting: Anonymous Coward 2558410 I wonder if the Igenex lab tests which dont get covered by insurance ever come back negative. Any test which is always positive isnt a test, its a moneymaker. Hell, you just have to know a lab tech, someone with the knowledge and ability to culture your blood. You can look at archived slides of Borrelia, and look at your own blood under the scope to see if anything looks familiar. Lyme isn't a money maker if treated properly. Thats why certain agencies work hard to silence LLMD's success stories. Simple, cheap anti-biotics can clear a chronic case. Last Edited by M*walk on 10/15/2015 03:50 PM “The tree of liberty must be refreshed from time to time with the blood of patriots and tyrants.” |
Anonymous Coward User ID: 27887974 United States 10/15/2015 03:50 PM Report Abusive Post Report Copyright Violation | |
Holldoll
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Doomy Tunes
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Anonymous Coward User ID: 70575276 United States 10/16/2015 03:48 AM Report Abusive Post Report Copyright Violation | Lyme disease mimics rheumatoid arthritis, its not the cause of every human illness in the world. Quoting: Anonymous Coward 2558410 I wonder if the Igenex lab tests which dont get covered by insurance ever come back negative. Any test which is always positive isnt a test, its a moneymaker. You are sorely misinformed... It can mimic over 300 different diseases. Also, evidence is starting to show that it could be a communicable disease... I bet you're a practicing physician arent you? |
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Anonymous Coward User ID: 70161917 United States 10/16/2015 04:27 AM Report Abusive Post Report Copyright Violation | |