My Family could use some Spiritual support right now. - update page 85

I asked the Lord to heal your son. I pray it is His will

Prayers for good results on Friday!
Chin up BBQ.

Don't let them convince you he has cancer and needs chemo. They kill people with chemo man!

Praying

We want to help.
What can we do to help?
State your needs.
I have bad kidneys, anything else that we can do?
Did you start a donation / help site yet?
There must be something we can do to help.

Please pass this prayer on to your prayer lists or church. Post far and wide. The more people praying the better!

Pray that God would miraculously heal Dakota, raise up a donor who is a match, or redeem a death by providing a kidney from a donor who has passed away.
Pray for wisdom for Dakota's family, for Dakota's nephrology team, and his other specialists as they manage his health daily.
Pray for Dakota to know God more, to see His mercy daily, and to cast his cares on Jesus.

Sending prayers for your son.

Lifting up Dakota, you, your wife and family in prayer.

Oh buddy, so sorry to hear about your sons health, prayers for a full and speedy recovery! I am not sure where your sons port is located, but my dad has a double port in his chest from Leukemia treatment, they did under the skin chest port, but you can ask the hospital for sterile (they are a clear, like 4x4” square) waterproof bandage you can put over the port location for the bathing purpose. We had to do this for about 3 months until the port was fully healed under the skin. Now he’s fine to shower/bathe but we are 3 years in. Also, make sure they are flushing his port regularly! This is a super must, even if they are giving treatment through the port and/or taking blood CBC’s from the port regularly, they need to also flush the port at a maximum every 2 weeks. We learned this the very scary hard way, do not let the docs neglect this port maintenance. Again, prayers for your son and your whole family!

Friday Update.

I gave you a update yesterday from the Dialysis center crew. So we got it from the Horse's mouth today. They did a sonogram and ultrasound on his left arm today to make sure he was getting proper blood flow thru there.

The reason for that is because that's where the AV fistula port will be installed. That will require surgery and that has been scheduled for December the 12th.

Once the Fistula port is installed it cant be used for 6 to 8 weeks, So he will have two ports, one in his arm and the current one in his chest.

He will not be going back to work anytime in the near future and hes going to tell his employer that tomorrow. They have been very supportive of his absence for the past 50 days or so. Our next move will be to take him down and apply for SSI.

Very emotional time at our home yesterday and today. But God never gives us more than we can digest, and our house trusts the plan.

Thank all of you for your support and prayers.

BBQ Boy and Family.

Thanks for the update, BBQ. You are strong -- an inspiration. Prayers for all of you!

Prayers said. Hang in there !

Blessings!

God is Great.
Praying for your son, you and your family.
God Bless you.

Lifting Dakota and your whole family up in prayer!

Y’all are wonderful parents.

Sit with him, hold his hand and tell him how much hes loved.

Continued prayers and healing being sent for your son as well as for you and your wife.

Prayers for your son and family as you navigate this journey. Dakota is young and strong and he will make it through especially with such great loving parents as you!

Please check support groups and do not be afraid to ask for help and support. Here are a couple links for you to check out:
How to find a living donor
[link to transplantliving.org (secure)]
Developing your Kidney Kampaign
[link to www.lkdn.org]



Last Edited by Blue Fairy on 11/15/2019 09:32 PM

So very sorry, dear friend. Really sorry he was so badly harmed by the food that it is life-changing on a permanent basis. You will all get through this, however, and be stronger and closer at the end of it!

(((( hugs ))))

I'm so sorry this is happening to Dakota, you and your family, but God is good and Dakota is alive and healing.People live long healthy lives with transplanted kidneys. I know a man that had a kidney transplant in his 20's, and he fathered two children and is now a healthy 60 year old. When he applies for SSI, inquire about applying for Medicaid. Medicaid (Medical Assistance) is different than Medicare (or SSI). Medicare pays 80%. Medicaid will pay the 20% balance left after Medicare pays. He should qualify for Medical Assistance with zero income. However, they may count the income he has received this year through September. He may be able to keep his insurance through his employer through COBRA. The premium he would pay would be less than the medical bills, but the premium would be high. Ask the social worker at the dialysis facility for help. This stuff is confusing and I know not what anyone wants to think about. Prayers and blessings for your whole family.

I was going to post this until I saw yours - good thinking! No doubt there are many here who would donate, which would get him off the list - no waiting for his name to come up. Just get a quick and easy test to see if you are a match and away you go!

My property mate is Russian Orthodox which means he has to take the trip to Vancouver (2 hours there then back) to his Church. So I have asked if his Church Father would bless a few votive candles So I can burn them in my window at night during prayer. If this is acceptable to you?

Also SSI isn't instant, there is a waiting period. Sometimes they are helpful, sometimes it's complicated.

COBRA, check into it.

YES YES YES

You have to go to family services, DSHS and apply for medicaid and assistance. It can take a very long time for SSI to kick in. They can also help with back medical expenses. You have to do it now, they only go back a short time but will cover 100% of your medical after he is on it.