My Family could use some Spiritual support right now. - update page 85

Continued Prayers for you and your Family BBQ Boy.

I know we live in the same greater area. Could you please tell me how to get tested for matching your Dear Son?

I will call my Dr. tomorrow and ask if she thinks I'm in good enough health to be a possible donor.

Bright Blessings strong Father.

God bless you for that! What a gorgeous person you are! I know they would not take mine, not with lupus, or I would be on top of getting tested too!

You should talk to someone to see which would benefit him more

SSI or SSDI

Do it ASAP because there is a wait period for SSDI


[link to www.ssa.gov (secure)]

YES YES YES and it can take months to get an official birth certificate. It has to be the legal official certificate, not the birth hospital one. Get on that first.

Every thing is time sensitive. They will only cover back medical expenses for a short time. Your assistance payments start when your paper work is approved, every day lost waiting for paper work to file is less payments he will receive.
SSI payments will go back to the time you filed, even it it takes months they will back pay him to the time he filed. DSHS will start making a small payment to him each month of around $300 as you are waiting for the SSI to start and get you on medical and food assistance that will carry on once the SSI does go through, then the payments will be around $800 a month plus food around $100 and medical.

Des, you are a Blessed Angel! I was wishing I could offer also but I am not in good enough health. I posted links a few pages back on Living Donations and how the family could go about finding one but here are a few more..

General Information on Living Donation
[link to www.kidney.org (secure)]

How to find a living donor
[link to transplantliving.org (secure)]

BBQ Boy should read this also and hope they have help with research through this whole process Dakota is going through.
My Dad had stage 4 Kidney cancer and I was his main caregiver, researcher and patient advocate.

Much Love and Hugs and God Bless You!

You do not have to have the official birth certificate for DSHS family services assistance just for the social security office, two different offices and organizations to file with.

Read every letter carefully as soon as it comes in. If you mess up and they do not get what they need on time you have to start over and loose any payments and back payments.

Also, you have to get on the section 8 housing list. It is a long waiting list so get started now. That is another office, organization and paper work process through Rural Resorses. Ask at the DSHS office for contact information. This is important, they will pay a good portion of his rent on the house or apartment of his choosing, that is within the guidelines. It can take a year on the waiting list so get started now and get the process going, once you are approved you will have plenty of time to find the right rental.

To do list;
1 order or make sure you have an official legal purpose birth certificate and Social Security card.

2 Appointment with DSHS Family Services for cash food and medical including back medical.

3 Appointment with Social Security office.

4 Appointment with HUD Housing, for rental assistance..

I have a Russian Orthodox icon and a blessed candle but don't know if I should pray until I get your families permission. I know how touchy some Christians can get outside of their Traditions. I'll figure out my kidney scenario this week which means in about 3 months time I will go see a Dr. ah, socialized healthcare...

quote BBQ BOY
I think they have tested for everything. The culprit seems to be a Hyper Thyroid gland, causing everything else to go haywire, including Kidney function, this is the dangerous part. Been in the ICU since saturday, he peed by himself first time today and filled 3/4 of the bag. Major breakthrough according to the Nurses and Doctors, this means he is not in complete renal failure. But they are still using dialysis to take the strain of his kidneys. We are taking it One day at a time, with Jesus's help.
end quote

BBQ Boy, I hope this isn't too intrusive, but did Dakota have any odd symptoms before this health crisis attacked him?

I am positively paralyzed here with fear for , well everyone. The newly acquired knowledge that A thyroid can cause so much malady in a life and yet most of us thought it was just a little none consequential organ.

Are there tell tale signs that serve as a warning IF you are aware of them?

Last Edited by Loup Garou on 11/17/2019 06:45 PM

I haven't read your PM yet. But we did read your post concerning this issue this morning. And the three of us discussed it at great length today.

We are humbled at your offer. But there is no way we could ask you or anyone to jeopardize their own health and well being for our son. You could end up in the same situation or worse than Dakota is in. We are speechless you would even suggest this. We are also very aware that there are others on the Donor list before Dakota. Some of those are Babies that never got a chance to make it this far. We have decided to take our place in line and pray for a quick solution and match not only for us but for the others in line.

As far as the other information we have received we thank all of you and are researching everything that has been suggested.

Keep in mind we just received a "Final Diagnosis" of Stage 5 Renal failure this past friday. For those of you following along, Stage 5 translates to Terminal without dialysis. So Fridays diagnosis was a critical step for us moving forward with assistance.

On a good note, we watched the Dawgs beat Auburn last night. We ate Grilled chicken sandwiches tonight. Our diet has changed drastically since all this started. And no dialysis until Tuesday.

Complications this week were minor. We went to fill a prescription on Saturday, one of seven. We had to leave one behind. it was over $1000 dollars for a 30 day refill. We are looking for the the reason because the first time we filled it, it only cost $28.... Hmmmm?

Thank you all for your support, you guys are amazing.

BBQ Boy. You should keep in mind, my offer to possibly help is not a whim. I have thought of all the possible outcomes.

I prayed and thought long and hard to come to my conclusion. I've left it God's hands with happy and serene feelings in doing so.

Please let us at least test to see if a match is possible.

Having a PLAN B is always good.

We never thought it was a whim, we know you are sincere. And we have much love for you for even contemplating this. We could never ask you or anyone else to do this for us. The risks are to great, even if you were a match.

I discussed this with my (almost 19) son last night as well and he said, dad, if you have good kidney's help my brother from another mother out. He's touring around SE Asia for 9 months and thought it a good idea. I just dunno how to go about it.

We have looked into this. Trust me having good Kidneys is not the point. Having ONE kidney is just as bad as having bad kidneys.

If you want to help the best I can suggest is check the Organ Donor box on your Driver's license if you guys have that over there.

BBQ Boy please see links, very helpful info. My Dad had one kidney removed and later 1/3 of the other kidney and he was functioning well with no dialysis. God gave us two kidneys for a reason, one for yourself and one for another in need.

The surgery is not any more risky than any other surgery if the person is in good health. A living kidney is less susceptible to rejection and also functions right away.The kidney forums were an invaluable resource for information and support.

BBQ Boy, Check your PMs.

Keep these words in mind.

Believe.



Live version by Rascal Flatts - I Won't Let Go (Official Video)



BBQ Boy. I Will Stand By You and Your Family.

Bright Blessings Dear One.

Last Edited by DestinyAKA-Des on 11/17/2019 10:13 PM

Too soon to give you more green, so I'll just put this here.

I don't know if you're a saint or an angel. Either way, you were sent from God.

God bless you, lovely lady!

No saint or angel am I.

But, to say God had no hand in this circumstance...would be a lie.

TY for hugs, one back to you.

I lit the votive candle in front of a small ROC foldable icon. It is just Jesus and Mary. I will go and see if your son and I are a match I'll try at least, as Des is. This thread is making me want to hug your whole family. I can not imagine what you are going through OP. It, it, ah, pains me to my soul.

You're beautiful Des.

There are some beautiful people on this thread. BBQB - I wish you would reconsider the fundraising, especially given the expense of his medication. Getting on MC/MA should help, but, you are facing many battles. I don't want to step on any toes and ask Trinity without your permission.

Hope Dakota enjoys his extra day off dialysis today. Much love.

This thread is proof positive of how precious and powerful GLP is...
I am in awe of the saintly people on this thread and how truly Christlike they are...I am in prayer for you all and feeling very blessed to know you here.

God bless BBQ boy, Dakota and all of their family! Praying for a miracle for Dakota with all my heart!

Also, may God Bless those here who are so unselfish and giving!

Peace and Love to you all!

This link tells you what you need;

[link to www.ssa.gov (secure)]


We may ask you to provide documents to show that you are eligible, such as:

Birth certificate or other proof of birth;
Proof of U.S. citizenship or lawful alien status if you were not born in the United States [more Info];
U.S. military discharge paper(s) if you had military service before 1968;
W-2 forms(s) and/or self-employment tax returns for last year;
Medical evidence already in your possession [more info]. This includes medical records, doctors' reports, and recent test results; and
Award letters, pay stubs, settlement agreements or other proof of any temporary or permanent workers' compensation-type benefits you received [more info].




You can actually apply online.

[link to www.ssa.gov (secure)]

Last Edited by FeedYourHead on 11/18/2019 06:36 PM

BBQ, you do understand that if Dakota received a kidney from the donor list, the process, risks, and recovery are EXACTLY the same from the anonymous donor as from Des, right? EXACTLY the same, except that Des's kidney comes from love, from knowledge of the situation, from a wonderful case of giving, as it would from any member here. I would be volunteering if I didn't have lupus, which generally attacks kidneys. No doctor would allow me to donate. Not even yours.

Please take another look at Des' offer, and Lance's, and anyone else here who is willing to donate. The risks and all of it are the same for them as for the anonymous donor. Wouldn't you rather have a donor whose kidney came with love all in and through it, and from someone you could hug and thank in person?

Tuesday update: Dakota is at Dialisis as I type, he should be home around 9pm est. His aunt is picking him up tonight. He has to be at the Hospital at 1 pm tomorrow for a Ultrasound, not sure what this is about yet but we think its about the fistula port they are going to install on Dec 12th.

He should be bringing a 2724 from home with him tonight. We have got all his paperwork together so we can get him to the SSI office as soon as we can.

Thank you all for your support. We are humbled, truly humbled by the entire GLP community.

Wise words Pooka.

BBQ Boy. I have booked an appointment with my Dr. for this Thursday. I've already PMd you her name and office #.

This Thursday I'm going to have a complete blood panel done, and discuss with her, this issue. I will get total honesty from her, and I trust her opinion. The rest of the info I already PMd to you, you can confirm if you wish.

Continued Powerful Prayers for Dakota and your whole Family.

Bright Blessings...