My Family could use some Spiritual support right now. - update page 85

I'm sorry I didn't reply to your previous post, but we do read everything and follow all links. He has to be on medicare, medicaid or have insurance to qualify for that. His insurance just expired on on Tues the 17th of this month. We thought it was good until 1/1/20.

I did save the link and as soon as we get him sorted we will be using this service if it's available to him.

Last Edited by BBQ BOY™ on 12/22/2019 09:41 PM

Bright Blessings of the Spirit of Christmas to You!

I'm going to give to something, and I can't think of a better cause to give to than the care of your sweet son.

I think most, if not all, of the folks who have given would want you to not even think about refunding the donations.

Don't even think about it!



Last Edited by Scorpionica on 12/22/2019 10:21 PM

My son was diagnosed with Type 1 Diabetes when he was 16. Children's Hospital told us to apply for medicare immediately because it's a long process. Not that he would use it, unless we lost our medical benefits for some reason. Then, of course, when he got older and was responsible for his own insurance, he would have the peace of mind knowing that he would have coverage if he ever lost his job and his benefits.

We were told it could take as long as 2 years and that it would be turned down at least once. It initially gets turned down for not being a "life threatening disease" and the doctor needs to confirm that it is and paper work needs to be submitted again.

So, what they are telling you is right, but keep at it, he will eventually be approved.

BBQ Boy, do not even think about refunding donations. Please, brother. I wish we could have given ten times what we did.

Peace.

Brief update:

Dakota is on the Phone with a Medicaid Representative as I type.

He also has Dialysis this morning they switched his Tue treatment to today because of the upcoming Holidays. So this week his treatment will be Monday, Thursday and Saturday.

Last Edited by BBQ BOY™ on 12/23/2019 09:33 AM

Good to hear from you and hope that beautiful smile of his lightens your heavy heart. You are doing a fantastic job, Dad and Mom.

The program does cover people with no insurance:

or no insurance cover the costs of Renvela® (sevelamer carbonate) tablets and for oral suspension through the RenValue program
Patients with no insurance
· Save up to $300 off out-of-pocket costs for each of 12 fills.
* Patients filling prescriptions that are covered by or submitted for reimbursement under Medicaid, Medicare, VA, DOD, TRICARE, or similar federal or state programs including any state pharmaceutical assistance program are not eligible for this offer. This program is not valid where prohibited by law, including in California and Massachusetts.

Ok Thanks I must have misread something there. Ill have him look at the site and apply as soon as he gets home.

Heres the link again if anyone else may need this.

[link to renvalue.com]

Well, from my part of the world, I wish to extend a Merry Christmas to OP and his family. And to all on this thread as well. Cheerio!

Merry Christmas Dakota, praying for you and your family.

Stay strong you guys, BBQboy hang in there my friend.

God Bless to all.

Dakota, BBQBoy. A *GIFT* is a *GIFT*. Not a loan.

Please use the funds *GIFTED* to your GFM to lessen the heavy loads in your lives.

All of those who have donated, never once viewed it as a loan. So, please don't carry that thought in your mind.

He’s eligible for COBRA. There’s no reason for him not to have medical insurance.

My Family could use some Spiritual support right now. Prayers, White Light, Good Karma, what ever you have to send our way we'll take it. Our 21 year old son has been in ICU since Saturday night. Medical related emergency, his numbers are off the charts, his Thyroid especially. They are not sure what the problem is. They have him on Kidney dialysis, and today it was twice. He also received two Pints of blood today. He is stable, but the root cause has not been found yet. They have a kidney Biopsy scheduled for friday, its been rescheduled twice already. He is alert, and surround by family and friends. Thank you in advance for your support.


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Just tried to donate but wonder as to what we the people have become. We fight "their" warz in such slavish fashion...

Just what have we become as we snipe "their" enemy.

My regards and good wishes but we as a thinking people are I think somewhat better than being a beggar...

Count me in, on all of that, up there.
Please keep mine.

BBQ Boy and family appreciate anything you can do, as do I!

I'm just a rabble rouser bringing some much needed attention to it!

[link to www.godlikeproductions.com]

I've just left a donation; we pray that you and Dakota have a Merry Christmas! Refund? Totally unnecessary. Dakota's future health is satisfaction enough. God Bless.

BBQ,
I love all the updates
You have done a wonderful job of everything...
Please dont refund any donations as they are like pennys from heaven... just think about that... i just looked and the GFM is at half...

Merry Christmas To you all!

God bless you!

:Christmas sign:

I donned my Santa's Helper Elf Suit, did a drop off in Dakota's Christmas GFM Stocking. God was good to me, so I was able to drop a bit more than I thought I could.

Merry Christmas Dear Family! May God Bless you all.



Last Edited by DestinyAKA-Des on 12/24/2019 07:24 PM

Thinking of your family, and wishing you all a Merry Christmas! Prayers for a very Happy New Year! God Bless.

As per returning donations I will tell you a (shortened) version of what happened today. My ex had a child with an Aussie fellow. He forgot to put money into her account and she was at the checkout with nappies and groceries and her card was declined. The woman behind her paid for it all and took the receipt and refused to give her number.

You do not give to get back, that would be a gross grievance to the giver. Giving without expectation of return isn't charity. It isn't 'karma points' it doesn't put another notch in your belt when you approach St Peter. people give when their hearts well up in concern for another and that is it.

So have a merrier Christmas WITH the money, or whatever. I think, and I can not think for another I know, that no one would want the money back. Heck get new tires to drive back and forth to dialysis with. Make sure the vehicle is all tickty-boo (English phrase for all good) and such. You seemingly have a long road ahead of you and everyone who chipped in gave you gas money.

Bbq Boy - I have been following your thread.
I found this thought it may help:

[link to www.kidneyfund.org (secure)]

I also found this one [link to www.kidney.org (secure)]

I was researching another disease that is affecting my life and came across a patient talking about how foundations can help. I immediately thought of your son.
I don't know if you have looked into this yet or not.
Just trying to help.

Wishing the best for you and your family

You are doing such a wonderful job as loving parents - you are handling everything in the best possible ways. You have been given a very difficult row to hoe, and yet are doing so marvelously! Anyone would be grateful and proud to have such parents!

Just keep it up, keep moving forward. With a couple more things properly settled, you can begin to feel your own feelings, which you have a right to, and a right to experience and grieve and feel anger over.

Dakota also will need to come to the grieving stage, and the anger stage. All part of healing for each of you, sorry to say.

Just hang in there, dear friend. We remain with you in prayer and holding all three of you up.

Wow, that's a lot of money, BBQ. For just one script too!

Bumping this thread and hopefully, people will give a few dollars here and there to cover these expenses until we get our miracle.

Merry Christmas and much love from my family to yours.

Merry Christmas and good morning everyone. We are overwhelmed by your prayers and generosity this morning. We Thank all of you.

Due to the hectic nature of our lives we didn't put a tree up this year. We did manage to cut some corners on some things and get Dakota two pairs of jeans and two flannel shirts. He really needed them, he has lost so much weight his clothes are falling off him.

We will be going first to my brothers house for Christmas dinner and then to my wife's brothers house after that. I'm sure Dakota will be showered in gifts at both places. We called ahead this morning to make sure no one is sick at either place. Just a simple cold would land Dakota back in the hospital.

The days to follow will be pretty busy also. He has Dialysis on Thursday morning. Friday he has a Doctors appointment to check the fistula and schedule the next surgery. We also have an appointment with a SSI attorney on Friday too. Saturday is Dialysis again, then we have a couple days off.

He has also been on the phone with Medicaid and we think they have found him a plan he can afford. Its $45 a month and they are sending him the package with the details in the mail. So that's where we stand as of this moment.

One again we Thank all of you so much.

Merry Christmas to everyone.

Praying for all to have a safe and good day.

Stay strong BBQBoy, much love to you and the family.