WTF? If they pass this LAW in Finland, every Finnish citizen's DNA will be registered in a national genome register | |
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Anonymer Feigling
User ID: 78496289 Germany 02/19/2020 05:08 AM Report Abusive Post Report Copyright Violation | Re: WTF? If they pass this LAW in Finland, every Finnish citizen's DNA will be registered in a national genome register So far it's reported only in Finnish: Quoting: Anonymous Coward 78048685 [link to yle.fi (secure)] You can translate it online, but here's my free translation of the article's key part. "Many Finnish researchers are concerned over the pending new law on establishing a national genome register. The goal of the register is to collect Finnish citizens' genome in a national register, so that it could be used, for instance, in the research and early prevention of heretidary diseases specific to Finns. The proposal suggests that the Social Insurance Institution of Finland, a governmental institution dedicated to providing welfare, unemployment benefits and other related services to Finns, will control the centralized register." It's kind of funny that a few days ago I received a text message from my private health care provider saying that it is now time for me to book a time to get myself sampled for the national biobank. No way I'm going to do that. NWO at its best. Emotion beats reason Don't let it be that way |
Anonymous Coward User ID: 77455346 Switzerland 02/19/2020 05:19 AM Report Abusive Post Report Copyright Violation | Re: WTF? If they pass this LAW in Finland, every Finnish citizen's DNA will be registered in a national genome register So far it's reported only in Finnish: Quoting: Anonymous Coward 78048685 [link to yle.fi (secure)] You can translate it online, but here's my free translation of the article's key part. "Many Finnish researchers are concerned over the pending new law on establishing a national genome register. The goal of the register is to collect Finnish citizens' genome in a national register, so that it could be used, for instance, in the research and early prevention of heretidary diseases specific to Finns. The proposal suggests that the Social Insurance Institution of Finland, a governmental institution dedicated to providing welfare, unemployment benefits and other related services to Finns, will control the centralized register." It's kind of funny that a few days ago I received a text message from my private health care provider saying that it is now time for me to book a time to get myself sampled for the national biobank. No way I'm going to do that. |
Anonymous Coward (OP) User ID: 78048685 Finland 02/19/2020 05:26 AM Report Abusive Post Report Copyright Violation | Re: WTF? If they pass this LAW in Finland, every Finnish citizen's DNA will be registered in a national genome register So far it's reported only in Finnish: Quoting: Anonymous Coward 78048685 [link to yle.fi (secure)] You can translate it online, but here's my free translation of the article's key part. "Many Finnish researchers are concerned over the pending new law on establishing a national genome register. The goal of the register is to collect Finnish citizens' genome in a national register, so that it could be used, for instance, in the research and early prevention of heretidary diseases specific to Finns. The proposal suggests that the Social Insurance Institution of Finland, a governmental institution dedicated to providing welfare, unemployment benefits and other related services to Finns, will control the centralized register." It's kind of funny that a few days ago I received a text message from my private health care provider saying that it is now time for me to book a time to get myself sampled for the national biobank. No way I'm going to do that. Nah. I fully understand that having a huge genome register would help researchers to better understand hereditary diseases and maybe develop treatments or preventive measures for them. However, making the register opt-out or even no-opt-out (hard to tell from the article) is outrageous. As it stands, they'd collect all information from existing databases (e.g. bone marrow and organ donor registers) and simply put it into the register, and new data would be registered without your explicit permission. If the register is set up, it should be exclusively opt-in (i.e. you give an explicit permission for including your genome in it) and your permission should be revokable at any time. You should also be able to set terms for the use of your data. For instance, no access for the law-enforcement, insurance companies, or any third-parties abroad. |