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Message Subject Prayer Thread Part 3.
Poster Handle tiger1
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Always praying for you and your husband

s27flowheart
 Quoting: Simple27


thank you so much! You are both in my prayers.

Hubs being a bit like Roy today and it's hard for me to cope with....plus I don't know what to do with respect to work....

After the last hospital stay I got a call from palliative care which totally blindsided me as the in-hospital doctor said nothing to me or hubs (as far as I know) about the referral to hospice and I am still kind of freaked out about it....I told them we would be in touch about it...but I haven't and I won't....
 Quoting: Bastetcat


Roy didn't want hospice, and neither did I. Unless you put the family member in a hospice facility, hospice nurses come for 1 hour a day, check the patient, ask if you need any supplies or meds, and then leave. You are not allowed to leave the house while they are there. They will not help with the care of your family member.
When Silver Patriot was terminal 3 years ago, I was appalled as to what little hospice does. Silver Patriots husband had no breaks until I got there. They had no family to help.

I totally understand what you are going through, my friend ! I know you need to work, but you are in a situation where it is impossible ATM. My oldest daughter quit her job to help me take care of Roy, and my youngest worked from home. My middle daughter lived right across the alley from my old house, and even though she has 4 kids and works full time, she came over with food, at the least.I was so Blessed to have my daughters to help !

When your loved one starts to become irrational, it makes taking care of them so difficult ! Roy did crazy things, like ask for a glass of milk, and then pour it into the nearest house plant. He broke a lot of the furniture. He broke the knobs and locks off the doors. He would put things where they didn't belong, like hide his cell phone in a box of drill bits in the basement,and hid his false teeth in a box of miscellaneous items under the bed.
The worst was when he just snapped, and pushed me into the dining room table. I hit the corner of the table and split my head open, literally. My youngest called the police and an ambulance for Roy. I knew he didn't know what he was doing, as the cancer was deeply entrenched in his brain.Of course I wasn't going to press charges, as he truly didn't know what he was doing. He was hospitalized for a while after this happened, and was home for 3 weeks before he passed away in his sleep.

Your Faith will sustain you, as it has all through this so far ! God loves you, my Friend !
 Quoting: tiger1


Thank you for the support...

Not sure if I can do the FMLA again, but I will check...one can only do it within a certain time frame before you can re-qualify for it...I didn't do it at all in 2020 to now, so maybe I can requalify...he gets verbally abusive and threatening, but he's too weak to do much else...then after awhile apologizes and remorseful...

I typed the above--and then had to clean him up, do his meds, the cat's meds, laundry and a little bit of other housework...usual things....

Counting my blessings as things could be worse....

praying for all with all my heart...and grateful for all of you...Tiger I am so sorry you had to go through all of that. MySoul, hope today was good...Simple hope and pray you and Nef are further on the road to recovery....Louis, praying for you whether you post or not..and I try my best to pray for all of you...

hf
 Quoting: Bastetcat


Even if they are weak, as Roy was, they can get a burst of adrenaline, and can do what you think they can't. Be on guard ! Prayers said ! hugs
 
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