I have it, but because I didn’t experience it during the tilt test, they don’t say I have it.

My experience? In the military, I had really really bad issues where my blood pressure would drop, and I would be lightheaded. I went to the doctor so many times, and the people there would check my blood pressure. So the one time they gave me saline and my BP dropped even more (he measured me at about 70/30 and thought the machine was wrong and upon recheck it was 50/25, and they sent me home with SIQ and to tell my division I wouldn’t be able to bring the SIQ until the next day. Told me to drink Gatorade. It made me puke.)...

I struggled in the mornings, get up, go to shower...I couldn’t keep the water cold enough to not freeze me and at the same time, not cause me to get so lightheaded. If I got lightheaded, I had to put the water on cold as possible and squat down, in the shower. It was hell.

I take a lot of vitamins and supplements and it seems to help. I have issues randomly now (sometimes, when standing, it just occurs after a random period of time), but it’s not as consistent as when I was in the military. Maybe it was caused by the boot camp vaccines, or maybe the climate. I also occasionally get the sensation in the shower, but not as bad. I can’t take long relaxing baths because I get that lightheaded and worry about passing out in the bath.

My menses makes me vomit and have this issue massively bad, but also, this, only very occasionally...I think it’s only happened a few times in my life, but it is very scary.

If I have any stomach pain, my vagus nerve reacts and my blood pressure drops off. Makes it hard to walk to and from the bathroom without getting tunnel vision blackness.

The other thing is when it goes on, my hands and feet, starting from tips of toes and fingers, get very tingly, as though I sat on them for a long time, but without the painful tingly pain, it just feels like static and it moves up my limbs and to my face.

The whole experience isn’t pleasant, and maybe I have a vasovagal syncope that isn’t POTS, but it still sucks, it can make things so difficult, even basic care becomes impossible when it is happening.

The most recent menses induced incident, I was so bad off that I couldn’t prepare food to eat, and it was too much just to go to the bathroom to be sick.

The lightheaded feeling that I get makes it very difficult not to vomit, pain or not. Also, when this is happening, my body struggles to digest protein, so I will frequently get sick with a meal I had over 12 hours prior.

So that’s the novelette of my experience.