Seeking suggestions for newly diagnosed type 1 diabetes to halt progression and extend the honeymoon period

Our 16-year-old daughter was diagnosed with T1D (formerly known as juvenile diabetes) a couple of weeks ago. This has been a very trying time for us, and I appreciate the well wishes I have received here. I've run the gamut of emotions, and now it's time to step back and look for options.

I have been searching online for outside-the-box options, but I know I might get better hard-to-find info by asking here instead.

I have a healthy distrust of pharm and western medicine practices, so getting sucked into that system has been an additional blow. Asking them for alternative ideas is not going to give me the good stuff.

The problem: In layman's terms, her immune system has specifically targeted and destroyed the Beta cells in the pancreas, the cells that produce insulin. There is a period of time (could be a couple weeks to maybe 2 years) known as the honeymoon period where some of those Beta cells remain and actually keep doing their work along with our external supplemental insulin shots. Eventually all of those Beta cells will be destroyed by the immune system.

I am looking for suggestions, if anyone has heard of anything, that will get the immune system back on track to slow or stop the attack on her remaining cells.

Yes, even with some salvaged Beta cells, she would still need insulin shots several times a day for the rest of her life, but at least some functioning Beta cells make maintenance easier since the body is so much more in tune and intuitive to sugar levels than we can ever be on the outside.

For example, there is a new drug in clinical trials (UC San Fran) to do just that, but I have serious doubts about getting involved in all that.

There is another researcher working on probiotics (and I am a big proponent of probiotics!) to calm systemic inflammation, which may or may not be a factor in triggering the disease, for example when the irritated immune system has to kick in for some other reason like a virus or general infection. I like where he's going with that, but need more info. And as probiotics users know, there are many kinds with various functions; it's a large subject to understand.

Just a little background info:
• My daughter was apparently quite healthy before this, with minor seasonal allergies in September/start of school season, like many people.
• She is active and thin.
• She is on no other medications, other than the occasional advil for cramps or minor headaches.
• She has a somewhat weak stomach, in that she can't eat large servings of fried foods or super spicy foods.
• She has had no vaccines at all in her life, and especially not the recent one that so many of us are avoiding. (I think this rules out some of the most obvious arguments about an immune system destroyed by a lifetime of way too many vaxxes, so that's why I'm mentioning it.)
• We generally have a pretty good diet, not too high in carbs or processed foods or junk foods, but of course we have some of that stuff. We eat a lot of organics and always avoid bleached flour, high fructose corn syrup, and the like.
• She is having some problems with yeast, so advice on that would be helpful too. (We are currently using garlic tablets and probiotics to try to correct an apparent imbalance.)
• I'm fairly certain she has been exposed to covid, but I don't think she has had it. We will be getting a blood test in the next couple of weeks (when we have time to catch our breath) to see if she has antibodies. Hubby and I were pretty sick in February 2020, before anyone had heard of covid, and the symptoms do seem to match up; our daughter never showed any illness at that time. She did seem to maybe have a virus at the beginning of school this year, but we assumed it was allergies and sniffles that lots of kids and teachers get around that time every year.
• Plenty of peers around her have been vaxxed for covid, so there is the possibility of exposure to shedding. There has been a lot of pressure from the school district to vax. She was homeschooled for the 5 years leading up to high school, but is now in public high school (sophomore year); last year she did get to go to school a total of maybe 21 days near the end of the year, with seriously annoying distancing, limited amount of students, and stringent masks. (I know, don't get me started. She was just so happy to be there with peers and mentors, so please don't bother piling on with criticism.) She does spend time in close proximity to other students, and they wear masks on the buses but not outside during competitions.
• Since late August or so, we have been following the Frontline Doctors protocol, including C, D, quercitin, zinc, and the whole list. I had thought I was doing my best by her immune system, but alas, something has obviously gone awry.

We are not awash with funds at the moment, but are willing to commit time and money to realistic suggestions, including travel if needed.



TL;DR Looking for alternatives to slow the progression of type 1 (juvenile) diabetes during the honeymoon period. Open to any and all ideas, no matter how "out there" it may seem.

Thanks for reading.



edit: typos

Last Edited by Renaissance Woman on 11/28/2021 04:11 PM