My Family could use some Spiritual support right now. - update page 85

I'm retired now, but worked for a Nephrologist who owned dialysis units for 35 years. I worked in the office,so I'm not familiar with all the medical aspects. The dialysis unit should schedule a consultation for you & your son with a dietitian and a social worker. These services are included in the cost of the dialysis. The dietitian can help you with a diet plan and should have recipes, and the social worker will help with insurance, cost of meds (perhaps getting free meds from pharmaceutical companies that have programs for renal patients), and advice on any other programs available to help with hospital bills etc. Usually the dietitian and the social worker will see you once a month (it is required by law), but they are usually available whenever you request. If they determine that the kidney failure is not reversible (and I pray that your son's kidneys fully recover), he will be eligible for Medicare (due to ESRD), but it will not be effective for 3 months from the 1st date of dialysis. If he goes on CAPD (continuous ambulatory peritoneal dialysis) or home hemodialysis Medicare starts from the 1st day of training. Your son may qualify for Medicaid. Do not say that you are responsible for his bills. Say he is on his own. Use his income (or lack of income) to apply for assistance. This would cover his bills and may even be back dated to the date he was hospitalized. Get a disability laywer. God bless you and your family. Praying for complete healing for Dakota!

Sunday update. The chest port he has in is temporary. It can't get wet, it's not the water they worry about its the waterborne bacteria that's a concern.

So everyday chores like showering become a chore. My wife got him in the kitchen today and washed his hair in the sink, afterwards He was able to get into the bathtub and bathe. I had bleached the tub and all surroundings prior to him bathing.

He said he feels like a new man. Lol. Smells like one too.

So Wednesday is the big day for all of us .. Biopsy day.

Dialysis tomorrow, Biopsy Wednesday, Dialysis Thursday, cardiologist Friday, Dialysis Saturday... never ending.

Sunday update. The chest port he has in is temporary. It can't get wet, it's not the water they worry about its the waterborne bacteria that's a concern.

So everyday chores like showering become a chore. My wife got him in the kitchen today and washed his hair in the sink, afterwards He was able to get into the bathtub and bathe. I had bleached the tub and all surroundings prior to him bathing.

He said he feels like a new man. Lol. Smells like one too.

So Wednesday is the big day for all of us .. Biopsy day.

Dialysis tomorrow, Biopsy Wednesday, Dialysis Thursday, cardiologist Friday, Dialysis Saturday... never ending.

Whats up BBQboy always good to hear that you're in good spirits ! Payer sent !

Yeah that!

Wednesday update:

It was an early start for my wife and Dakota today they left the house at 5:30 am to go to the hospital for Dakotas Kidney Biopsy. I stayed home to hold the fort down.

The biopsy started around 8:30 and took around an hour to do. Then they brought him into a recovery room and they waited for him to be released. And that took until 4:15 pm. He had been sedated during the biopsy and his Hemoglobin level dropped so they held him up there until all was ok.

They got back home around 5:30. Long day for them.

Tomorrow he goes back to dialysis and then Friday he has an appointment back at the hospital, Biopsy results will be in and we find out where we go from here forward.

We Thank all of you for your prayers and continued support of our family.

More prayers for your family.

My Family could use some Spiritual support right now. Prayers, White Light, Good Karma, what ever you have to send our way we'll take it. Our 21 year old son has been in ICU since Saturday night. Medical related emergency, his numbers are off the charts, his Thyroid especially. They are not sure what the problem is. They have him on Kidney dialysis, and today it was twice. He also received two Pints of blood today. He is stable, but the root cause has not been found yet. They have a kidney Biopsy scheduled for friday, its been rescheduled twice already. He is alert, and surround by family and friends. Thank you in advance for your support.

Wednesday update:

It was an early start for my wife and Dakota today they left the house at 5:30 am to go to the hospital for Dakotas Kidney Biopsy. I stayed home to hold the fort down.

The biopsy started around 8:30 and took around an hour to do. Then they brought him into a recovery room and they waited for him to be released. And that took until 4:15 pm. He had been sedated during the biopsy and his Hemoglobin level dropped so they held him up there until all was ok.

They got back home around 5:30. Long day for them.

Tomorrow he goes back to dialysis and then Friday he has an appointment back at the hospital, Biopsy results will be in and we find out where we go from here forward.

We Thank all of you for your prayers and continued support of our family.

Oh BBQ Boy . . . this feels like it has gone on for a really long time. The biopsy results. And it must feel one hundred times that for you. I'd be out of my mind.

Sending the most caring thoughts for your son to be well soon!

:gwsoon::gwsoon::gwsoon:

So we have some new news, it's not what we were expecting but it is what it is. The preliminary results from the biopsy are back and the Fresenius Kidney Care informed Dakota today while he was at dialysis.

He will need to continue Dialysis until he has a Kidney transplant.

Not what we wanted to hear, But we are a Strong family and will get through this. He has an appointment at 9:30 am tomorrow to get it officially from his Kidney Team.

BBQ Boy and Family.

Oh! I don't know how that works. But I'll keep on praying.

Will send more prayers tonight...

Isn't life weird. Life just chugs along and then something catastrophic. And the learning experience is as grand as the pain and suffering. Long hours, worrying, sharing love and moments that are precious.

And wondering how you're gonna get through it, and then God's light shines when you least expect it.

So we have some new news, it's not what we were expecting but it is what it is. The preliminary results from the biopsy are back and the Fresenius Kidney Care informed Dakota today while he was at dialysis.

He will need to continue Dialysis until he has a Kidney transplant.

Not what we wanted to hear, But we are a Strong family and will get through this. He has an appointment at 9:30 am tomorrow to get it officially from his Kidney Team.

BBQ Boy and Family.

So we have some new news, it's not what we were expecting but it is what it is. The preliminary results from the biopsy are back and the Fresenius Kidney Care informed Dakota today while he was at dialysis.

He will need to continue Dialysis until he has a Kidney transplant.

Not what we wanted to hear, But we are a Strong family and will get through this. He has an appointment at 9:30 am tomorrow to get it officially from his Kidney Team.

BBQ Boy and Family.