My Family could use some Spiritual support right now. - update page 85

I'm so sorry BBQ boy! You have my prayers!!! I went through this with a close relative the past 2 years. Well, with needing a liver transplant, not kidney.

My relative was walking around doing tourist stuff one day and then was in an ICU the next.


It's not fun. Its really freaking scary when organ/organs go haywire. I'm glad that you have a close family! So glad for your son that he has awesome parents!

Keep the faith! Praying for you all!!!

Please let us know what we can do in addition to praying.

Family services will also pay him around $300 a month, not much and about $100 in food help in addition to paying your medical.

Once the SSI kicks in it will be close to $800 a month and about $100 in food plus medicaid that covers all medical. He will also qualify for section 8 housing rental assistance.

Sending prayers!

I’m so sorry!! I’ll be praying, because God answers prayer!!!

There's a lot of love being sent to from this big, dysfunctional GLP family. Can you feel it? Much love, friend

Pray your son finds his match soon and continues healing. I noticed your BBQ GA chapter and was reading about the EColi and wonder if by chance you're in the Atlanta area? My daughter got so sick a couple years ago at a burrito shop and it was so odd because I ate with her and I didn't. It wasn't the typical food poisoning type deal, so violent and left her weak for a couple weeks. Anyway, just wondering where your son might have picked it up. Thinking of your family.❤

Continued prayers

There is nothing you can't do!! ((BBQ BOY))

Please read this thread to your family. We love all of you.

God Bless You All....in my prayers continuously

WOW- sorry to see this OP- my nurse pract. caught hypothyroidism in me - i had an infection - pilonidal cyst i'd had for 20 years - well it became reinfected after all this time and stupid biatch wouldn't give me antibiotics and send me to surgeon- went to emergency room they gave to me(dr. just happened to go what i went through in brazil...as a christian ministry dr) anyway- i had gone through 5mos w/nothing done cuz dr.s thought i was just asking for pain meds- the infection had climbed up my back b4 leaking out the old tunnel out top of my butt crack- so i didn't know it was my cyst even though back pain was horrid

also read up and can't remember if it was too much fish or not enough causing hypothyroidism too - i'm guessing he didn't get a flu shot due to glp awareness not to, but if he did - could happen his system was overwhelmed- my sis n' law just went to hospital for sickness and they said there's new strain of flu causing people to stay sick longer...they gave her antibiotics too

many things affect thyroid like this- toxoplasmosis or cat scratch fever can do this as well- he have a cat?

anyway so sorry he needs kidney transplant and dialysis so young-

ps the toxoplasmosis i think killed my cat- 16yrs had outdoor cat w/it come in and infect her w/o my knowledge until too late- several months later she got sick started eating herself and died of kidney failure...it develops cysts in cats i read even though they can survive the flu like sickness of it even develop immunity when young- but the cysts i figured got into her kidneys and plugged them causing the failure and her death-

just a thought in case doctors didn't think to check...

BBQ Boy...man I've been watching this unfold now since it began for you and your family. I haven't really known what to say and don't really know even now as I think I may be like others here, I just feel so helpless and overwhelmed by what you folks are going through. I can't even begin to imagine the anguish and emotional toll this has on you.

I will ask this as simply as I know how, other than prayers what do you need from your GLP family? I don't have money myself but I do have time. I'm an old retired fart insurance guy (for the most part) and can do any research you need done regarding insurance or benefits, anything that will relieve some of the stress for you.

I know yours and your families energies are directed toward your son as they should be but please, don't forget to take care of each other, including yourself.

Please just know you, your family and your son are never far from our thoughts and you are always in our prayers.

Keeping Dakota, you and your family in my prayers.

:JesusHelps:

We are going to try and get him down there this coming week to apply for SSI. Now that we have a diagnosis. Does anyone know what he needs to take with him? As far as Identification and paperwork?

[link to www.ssa.gov (secure)]

[link to www.ssa.gov (secure)]

^^^ It is a long process and the sooner you start the better. Your physicians will need to be involved as well in providing medical records, but SSI will help you with that process. I have helped many patients go through the process, it is a little daunting but don't give up. See the links above.

Date of initial loss of work/ability.
Social Security Card (original not a copy) and ID.
Last paycheck stub.
Letter from doctor saying he can't work. (they will write you one, just ask the office). Make sure it's full inability to work and not likely to return to work!

and blank check for direct deposit.

Last Edited by Agent 99 on 11/16/2019 06:54 PM

Thank you both !

Lord of heaven and earth,
I pray that as I search for knowledge in study that I would discover divine treasure.
May I be able to sift through all I read to find the gems of your kingdom.

Lord, I long not for the wisdom that leads to power or fortune but the wisdom that leads to faith and love.

Guide my pathway as I thirst for your truths.

May I drink from your word and pour out this heavenly water on others,
Your water of life, faith, hope, truth and love,
Into the hearts and lives of all I meet.

Amen.

He will need a copy of the 2728 form completed by the dialysis clinic which shows ESRD (end stage renal disease). Now that you have the diagnosis the 1st date of dialysis (which was when he was in the ICU) should be on the 2728 form. He will be eligible for Medicare 3 months from the 1st date of dialysis. He may be eligible for Medicaid now. Make sure he applies for Medicaid as well as Medicare. They are different. SSI is social security (Medicare). He may be eligible for Medicaid now...which will cover his medical expenses until Medicare becomes effective. The dialysis center should provide you with a copy of the 2728 form. Much love and prayers!

.
... SHALOM! and HUGS!!!!! ...
.

Do everything online, you will be guided step by step.. ***** READ directions before beginning the process, if I am not mistaken you get locked out if you pause the application.

You need the name of the doctors, dates of all medical visits, name of hospital and clinics and the dates.

They will give you an appointment date at the time that you fill everything out.. DO IT ONLINE, have all info stated above in hand before you begin..

date of 1st illness
1st doctor / hospital. date, address of hospital. phone number of hospital
2....

on and on.. Since this is so recent it should be easy to get all of the medial info together rather quickly..

Takes about 2 hours online to fill out application.. BTW,, he can't lift a 16 ounce can of beans, of that I am certain..

Good luck

[link to www.ssa.gov (secure)]
snip...
You should apply as soon as you become disabled. If you apply for

Social Security, disability benefits will not begin until the sixth full month of disability. The Social Security disability waiting period begins with the first full month after the date we decide your disability began.

Last Edited by Loup Garou on 11/16/2019 09:23 PM

And Medicaid might pay some back bills. Let them know how much is left!!!

He is going to need an official birth certificate. That is what takes the longest if you have to order one. Get on that first thing.

All the doctor's reports, their names and addresses, birth certificate, indication of need of transplant.

Start at DSHS first, PLEASE!!! So many have told you and explained to you - hurry up and do it so the bills will be paid and income started.

SSI alway refuses the first application and usually the second as well. IT will take many months to get the SSI - start first with DSHS.